Sunday, February 5, 2012

Oh, off to meet my oncologist.

Dear Mr. Hodgkin's,

Shall we revert back to my oncology appointment this past Friday? I'm hesitant because although two days have passed, the shock and the fear seem painfully fresh. I've been chiding myself for my stunned response, sir; I'm very much disliking this disoriented feeling you provoke, but can't seem to bypass it. Will there be a time when you cease to offend me, sir? Or is my offense possibly a cause to celebrate: my heart remaining tender under your rough grasp? I must probe further and possibly deeper: why are we repelled when bad things happen to us? As if we deserve otherwise? Is it not inevitable in this life? Sir, I see this as nothing but a sure sign as to how we were made; our Creator's original design for us humans was always to live in perfect peace testified in the Garden of Eden. I digress.

I laid in bed Friday morning staring at my ceiling. I heard voices and a bit of commotion downstairs, but couldn't get myself to move. If I did, I knew I'd have to face the day and what could potentially unfold, which jolted fear in every crevice of my mind. How far have you spread at this point? What treatment would be necessary to get rid of you and for how long? How much pain is involved (I'm pretty much a child)? What are the side effects, short-term and long-term? And the question that is still hard for me to spit out... what's the percentage of those who completely heal from you? Eh. If my bladder wasn't so demanding, this rampage would have gone on longer than the 30 minutes already spent, but begrudgingly, I hoisted myself out of my comforting bed, and with every effort I could muster, faced the day.

Sitting in the lobby of the oncology center, I surveyed the scene.  I saw a silver-haired man sit alone as he candidly talked to the receptionist... must be a long-time patient. I looked to the right as a short grandma in her 80's was being escorted inside the building with her arm looped around the arm of a younger man twice her size... her son? My eyes drifted back to the left where an older woman obviously well into her chemotherapy sat near a fake fireplace... with a scarf wrapped around her head and her eyes somewhat hollow. Please, Lord, let the life remain in my body and let joy still mark my face. It quickly became apparent to me that I was the only one in the lobby under the age of 55 (besides my oh-so-young parents that sat to my right). At that, I looked right at my parents and shared my thoughts, "I should not be here. Man, I'm only 23. I hate this... I just really hate this."

It was then that I heard my name called, and within minutes, my parents and I were stuffed into a baby patient room like sardines. I was told this two-hour meeting would be packed with information and could be overwhelming. Advice: Bring a couple more ears and a way to record everything. Thus, mom, dad and a G2 pen (nothing better). A nurse sat down and started going through my records, family history, and current state of health. "You seem healthy, how often a week do you work out?"
Oops, haven't since sophomore year of college.
"Well, do you at least oblige a healthy diet?"
I had ice cream cake for dinner last night.
"Um, okay..." And then came the argument for staying fit, maintaining a healthy diet, yada, yada, yada.
Yes, lady, I've heard this all before; I'm sorry to say I'm still not convinced...
Let's just say, she did not seem pleased.

I soon wondered what my oncologist would be like, but I didn't have to wait long to find out... With a couple knocks, a burly man with suspenders walked in, greeting me with a very thick-Polish accent. He exuded a quiet confidence as he shook our hands, sat down and positioned his chair but a few feet away from myself, staring right into my eyes.  If the situation wasn't so serious, I would have thought he instigated a staring contest; that of which I would have surely won. Trust me, in Kid-O-Deo, I'm a reigning champ. Nonetheless, I'm somewhat competitive, so even if the situation deems it unnecessary, I still rise to the occasion.... so I stared right back.  He dived right into the information and throughout it all, I knew he was trying to read me, get to know my reactions, as he paused after delivering each blow, each miserable side effect, each piece of treatment. (Side-note: He never averted his eyes... until he had to address a question from my parents. Winner.) Everything he said was so overwhelming, I finally took a breath at the end and then looked down to realize I never wrote anything down. 

But here is what I did learn about you, Mr. Hodgkin's (via the notes of my mother):
  • My tumors (ew) are attacking the supportive tissue around the lymph nodes.
  • There are different types of you, sir, and I have the "Classical Nodular" kind, which is reported to be the most common and easiest to treat.
  • I have to go through 4 more tests this week to determine exactly what stage you are at, sucka (3 on Monday, February 6th and 1 on Tuesday, February 7th). They know you are at a Stage 2 or 3, and if you are only found in my upper diaphragm, I will be diagnosed at Stage 2. These tests will also determine the health and strength of my lungs and heart.
  • Treatment for you, in my case, will only be chemotherapy and not radiation, and this will be given every 2 weeks for a total of 6 months/12 doses.
  • How to know chemotherapy is working? PET scans will be taken after 2 months and then at 6 months.
  • I have an appointment back with my oncologist this Friday to go over my tests' results and talk more about treatment and when to schedule those.
  • Here's the biggest blow: I will need to be on a healthy diet and I'm supposed to be active... I knew that nurse gave me a smirk as she turned to walk out of the room.
So Mr. Hodgkin's, it seems as if my day tomorrow will again be spent at the good ol' hospital because of you... It appears you are enjoying this. Hmm, no matter: I have an entire herd of people praying for me and against you and this is the truth we stand on: "Now this I know: the Lord gives victory to His anointed. He answers him from His heavenly sanctuary with the victorious power of His right hand. Some trust in chariots and some in horses, but we trust in the name of the Lord our God. They are brought to their knees and fall, but we rise up and stand firm" Psalm 20:6-8. You may scoff, but "indeed, none who wait for Him shall be put to shame" Psalm 25:3. Claiming that all the way down and back...

Yours Truly,
Heid

12 comments:

  1. Dear Heidi,
    This my second time trying to send you a message in this blog. Frank and I are not very smart on this tech stuff but I think we may have gotten it right this time. I just want you to know we are thinking and praying for you often each day. It has been so interesting to read your blog and makes us understand better what you are going through. You are so right about the many people praying for you and we will continue too. We love you and God loves you and will never leave you and will carry you when it's to hard to walk, think of the poem "Footprints".
    Love, A.Jan & U.Frank

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  2. dear heidi.
    I think you're going to kick this mr Hodgkin in the butt. I love your attitude and perseverance. the book of Joshua has always been a great support to me during hard times. I promise to pray for you. be brave. be blessed. hugs. jamielynn

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  3. Hi Heidi,

    I haven't met you but have some good friends that have asked for prayer for you and the support of the EBC community is large and wide reaching. So thankful you have that behind you! Thank you for your honest and heartfelt writing. I have no doubt that Mr. Hodgkin's had no idea who he was messing with and is in for a major fight! Will continue to follow your journey and pray daily for you.

    Tina

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  4. Heidi,

    The way you write is absolutely wonderful! Thank you so much for sharing with us this journey that you are on. Your words bring nothing but glory to God and through you He breathes truth and life! You are such a sweet blessing and you will be in my prayers daily.

    Steph Manthey

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  5. Heidi, so sorry to hear :( I know this can all be so scary! Know that so many people are praying for you - keep your positive attitude! Sincerely, Monica Haugen

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  6. Heidi
    You are one of the most amazing people I have been blessed to know. You are a fighter and have a spirit about you that no one will take away. Keep up the fight and know you are loved by all, especially those you have touched in Kid O Deo. All our love and prayers. The Cantwells (beckie, danny, Caylin and Avery)

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  7. Heidi,

    Praying for you Heidi. As I read your blog, I see Jesus just pouring out of your life. What an encouragement and testimony to all who read! Your life touches so many. I pray for you tomorrow as you have your last test that you will be filled with strength and hope from the Spirit within you. May you always sense God's presence...

    Praying,
    Lana Rohrer (Guess we haven't changed our blogging ID since we've had Eleanor...need to work on that next.)

    BTW - You have any desires to be a writer?

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  8. Heidi, I am praying for you today! and will continue to do so. Thank you for taking the time to write and share what is happening. You are such encouragement to me, that in the midst of difficulty and hardship, you remain steadfast and dependent on our Mighty Lord and Savior! Praise be to God that He is in control and that His word is true and reminds us that He has already won the battle!
    Love you so much! May God continue to be your strength in this battle!
    Praying,
    nat

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  9. Heidi,
    I don't know you, but I am a fellow Eaglebrooker (LL) and a sister cancer survivor. While not the same beast (I had breast cancer, stage 3), the emotions and reactions are similar. Your onc sounds like my onc (Dr Petryk at MOHPA in Maplewood) An onc who looks you in the eye and can take any question or fear you can dish out is one that you want to keep.

    You have many, many people praying for you. God, prayer, family and friends will get you through this.

    {{hugs}}

    Cindy

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  10. Hi Heidi -
    I am another EBCer. You don't know me but thank you for letting us into your journey. Your heart for God shines through in every word! I am thankful and honored to call you sister in Christ. I will be praying fervently for you. Fight the good fight and remember you do not need to rely on your own strength. On those days when it seems too hard to get out of bed take your strength and courage from the ONE who "put the stars in the sky and taught the sun how to shine". :) rest in HIM.
    Love from me to you
    Jenny Kom

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  11. Hi Heidi,

    I am a fellow Eagle Brook attender (Blaine Campus). By looking at your age, I am sure that you probably graduated with my son. Your blog caught my eye because, my brother also was diagnosed with Hodgkins Stage 4 on January 5, 2012. I wanted to let you know that after one round of chemo for him, that his tumors have shrunk by 75%. I love the way that you "talk" to Mr. Hodgkins. He is under your feet! There is no name above the name of Jesus! I will be praying for you. "Surely God's goodness and mercy shall follow you all the days of your life and you will dwell in the house of the Lord forever!" Psalm 23:6 Can I have permission to share your blog with my brother? :-)

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  12. Hi Heidi-

    I am a fellow Eagle Brooker as well (well, I would be, if we hadn't moved across the country a couple months ago). As someone already mentioned - I was going to ask if you saw Dr. Petryk at Minnesota Hematology and Oncology?! Too funny. I saw him about a year ago, but as a hematologist for a blood disorder I have that has caused me 2 miscarriages so far. He was a great guy!

    Although I don't know you, I'm praying for you. Keep your eyes focused on the ultimate Healer. Trust in His plans and rest in His peace.

    Sam

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